DNA tests and Laboratories

[mijke]

Thanks for all the info!

Because I know that groups of several breeds did get problems with research labs and university’s (about rights, prices aso) I still have some comments and questions:

Test
Of course I will cooperate with such research (like I did tell you before). But not with € 300 for each dog!

• Has the university already a validated HD test for an other breed?
• Is this the price of € 300 for an (already for CsW validated) real test?
  
• Or is this a price for research and validation of the test for CsW?

Because for me it would be crazy to pay as an owner such a price for research!
For example:
In other countries there are also labs and university’s working on DNA test for HD. And theses research labs are asking EDTA blood but owners do not have to pay for research!
The university Maisons-Alfort in France is working on a DNA test for PRA special for CsW, owners can send blood, but do not have to pay for research.
Before the dwarfism test was validated for CsW, all owners of carriers could send EDTA blood for free for the research.
And only when the test was real validated and working for CsW, the owners has to pay for the test (about € 100)

Storage
When people pay € 7 for storage a blood sample it is a low price
But what are the arrangements with the lab about this storage??

For example:

• For how long is the storage?
• Who is the owner of the blood sample? The owner? The group that manage the data? The lab?
• And who can decide for what tests the blood is used in future?
• Which other test this university research lab has for CsW breed?
• Can an owner or the group (who manage the data) decide which test will be done with this blood?
• When an owner or the manage group wants to do a test of this storage blood in an other lab, what do they count for distillate DNA and sending to an other lab?

My suggestion for an international DNA research database for CsW breed, was based on an international group (of breeding clubs) that can manage this database for the health of the whole population.
But also to provide that owners have to send blood for every new test, or has to pay a lot for research or tests!

When an international “manage group” has a lot of blood samples of the same breed in storage, they are very interesting for several labs!!
So such an int. group can negotiate with labs for developing/research of tests. And then they can negotiate with labs for quantum discount for tests!

And I hope the German initiative will work out in this way!